A Sheffield epilepsy organisation has urged people with epilepsy to attend meetings where they can learn about the condition and gain and offer mutual support.
The Sheffield branch of Epilepsy Action holds monthly meetings where people affected by epilepsy can meet other people in similar situations and compare experiences.
Duncan Froggatt, chairman of Sheffield Epilepsy Action, said: “We feel it’s important to have places where people can come together in person to meet others in a similar situation… Although there are excellent opportunities to gain information and support remotely by telephone and the web these are no substitute for personal contact”.
The Epilepsy Action offers a free telephone helpline, email helpline and on-line forum as well as the wealth of resources at the main website.
Mr Froggatt, said: “Many people remain uncomfortable using computers even while they have become an essential part of perhaps the majority of people’s lives. Even those that are happy with computers may prefer a personal experience. Someone trawling the internet can sadly be led astray”.
Britain’s largest epilepsy organisation, Epilepsy Action aims to raise awareness and help people feel more open to talk about their epilepsy.
According to Epilepsy Action, there is an estimated 600,000 people with epilepsy in the UK.
The organisation campaigns to improve the healthcare services for people with epilepsy as well as working with education professionals to improve the support for children and young people with epilepsy.
Daniel Jennings, the Media Officer from Epilepsy Action said: “Epilepsy is an invisible condition yet it affects people’s lives in so many ways. Low self-esteem, social isolation and gaining employment can be just some of the issues which people with epilepsy have to deal with”.
“As a result, many people feel uncomfortable talking about their condition for fear of discrimination or feeling embarrassed.”
“Epilepsy Action is there for people when they need us most. Whether it’s a chat with one of our helpline experts of friendly support at one of our coffee and chat groups.”
Purple day, the international awareness day for epilepsy is coming up next month on the 26 March.
For more information, visit epilepsy.org.uk or call Epilepsy Action’s helpline on 0808 800 5050.