The Brain Tumour Charity have organised a meet-up in partnership with Clifford House and Sheffield Teaching Hospitals for diagnosed young adults in Sheffield today following a national funding crisis.
Less than three per cent of the £500m worth of funding, which cancer research in the UK receives annually, is given to brain tumour patients and research.
Emma Wood, Young Adults Services Manager, said: “The funding gap is devastating as we know brain tumours are the biggest cancer killer of young adults.
“More money needs to be given to services to improve outcomes for those diagnosed. They need a better quality of life so a diagnosis isn’t simply a death sentence.”
Almost 12,000 people are diagnosed with a primary brain tumour each year, including 600 children and young people, hence why Wood places such emphasis on the funding gap.
Young people, who have been diagnosed, often feel disconnected from the healthcare system, and the lack of funding means that they often have to rely on charities for community support.
Organisers from The Brain Tumour Charity have said that the meet-up will combat this by bring together people that may feel alone or isolated, after being diagnosed.
Wood, said: “The meet-up is crucial is bringing together people, who truly understand each other, and can share their experiences in a non-judgemental way.”
The current life expectancy of those living with a tumour is 12 to 18 months, but many steps have been taken in Sheffield to change this.
Last year, the charity launched the HeadSmart campaign to reduce diagnosis times, and the meet-ups give young people tips on dealing with the side-effects of a brain tumour, which include fatigue and disability.
Today’s meet-up is in partnership with Sheffield Teaching Hospitals, and is supported by Clifford House.
It is the first meet-up to be held in partnership with external parties, and the charity hope that this will offer the young people, who will attend, with even more services.
The charity have said that the meet-ups provide workshops delivered by local organisations to connect young sufferers with the community.
Today’s meet-up will finish at 4pm. For more information on future meet-ups and the HeadSmart campaign, visit https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/young-adult-service/young-adult-events/ and headsmart.org.uk.